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Pumpkin has just finished with the child development clinic, day 2.
Pumpkin has semantic-pragmatic disorder, as defined by the speech-language pathologist today, who said she is definitely on the spectrum and was talking high functioning autism.
We'll have a big meeting on 18 Sept in the morning, with all the professionals she's just seen these last two mornings, and pool the information into one big report, which we can then take to schools and make sure that they can help her when she gets there.
She has problems understanding the nuances of what is said to her, she has social impairments (ie she cannot understand what kids are doing or why, or indeed relate to kids at all), and she has little/no imagination, cant imagine people or relate to them.
Every professional we've talked to AGREED with us today. We were gobsmacked, stunned really, at how receptive they were, instead of being fobbed off as we have been for so long by health visitors etc, told pumpkin was normal, etc. The CDC didnt think she was normal, oh no.
*aims this at the entire planet Earth*
I FUCKING TOLD YOU SO!
I've been saying it for 3+ years, the kid is autistic. I've known it from birth - she was never 'normal.' She's 'disabled.' She's 'special.' She's different.
My god, the relief and vindication are almost palpable.
Pumpkin has semantic-pragmatic disorder, as defined by the speech-language pathologist today, who said she is definitely on the spectrum and was talking high functioning autism.
We'll have a big meeting on 18 Sept in the morning, with all the professionals she's just seen these last two mornings, and pool the information into one big report, which we can then take to schools and make sure that they can help her when she gets there.
She has problems understanding the nuances of what is said to her, she has social impairments (ie she cannot understand what kids are doing or why, or indeed relate to kids at all), and she has little/no imagination, cant imagine people or relate to them.
Every professional we've talked to AGREED with us today. We were gobsmacked, stunned really, at how receptive they were, instead of being fobbed off as we have been for so long by health visitors etc, told pumpkin was normal, etc. The CDC didnt think she was normal, oh no.
*aims this at the entire planet Earth*
I FUCKING TOLD YOU SO!
I've been saying it for 3+ years, the kid is autistic. I've known it from birth - she was never 'normal.' She's 'disabled.' She's 'special.' She's different.
My god, the relief and vindication are almost palpable.
shocked
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He did have a weird fondness for Jean-Michel Jarre though, I'd keep an eye out for that if I were you...
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What the SLP said today was that she's not qualified to make the *medical* diagnosis of HFA, she's only qualified to diagnose the speech aspect, which was semantic pragmatic disorder. She said it may fall into the bigger picture of HFA, but she can only do her part of it - the rest will do their parts, and they'll all come together on the morning of the 18th Sept, and paint a clearer picture for all of us, so we'll walk away with an answer.
Likely it will come away as HFA, not just semantic-pragmatic.
Pumpkin could use 'confiscated' in a sentence at age 2, ffs...
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I'm glad you guys are finally getting some answers, especially while the munchkin is still plenty young and able to benefit from therapy. Let's hear it for unique brain chemistry.
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I dont stray too far from the Asperger's diagnostic criteria myself.
I'll post again in 2 weeks when we finally get a written explanation of everything they found and what its final official name is, but it looks like it'll probably be HFA.
Thanks Happy. My f-list's support has been priceless.
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Go you.
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Plus HFA will be a much more useful label to have because people have heard of it - no one's heard of semantic pragmatic, at least not in the benefits agency. If they label her HFA, then she can get financial help which we cn use to send her to the gym class they recommend to help her weird gait and unstability on her feet and inability to pedal a trike.
Soooooo, yes, we're on the road to getting help! AT LAST! Horray for the NHS doing their jobs for a change, eh? :)
Thanks so much for your support. There's a reason parenting her has been so hard, so intense. Thank god someone else recognises it.
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*hugs*
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