Entry tags:
click this link
if you do nothing else today, click this link:
http://www.think-differently.org.uk/
These interviews, oh my goodness.
Wow.
http://www.think-differently.org.uk/
These interviews, oh my goodness.
Wow.
links on the Beeb today
Today's Beeb, in the health section:
http://news.bbc.co.uk/player/nol/newsid_7060000/newsid_7066900/7066936.stm?bw=bb&mp=rm&asb=1&news=1
http://news.bbc.co.uk/1/hi/wales/7066436.stm
I think its very important that people know that autistic children arent just 'naughty' ... It can be difficult, especially when family think you're allowing your children to run rampant, when that is clearly not the case.
And expecting everyone to act like Rainman just because they're autistic is wholly unfair.
http://news.bbc.co.uk/player/nol/newsid_7060000/newsid_7066900/7066936.stm?bw=bb&mp=rm&asb=1&news=1
http://news.bbc.co.uk/1/hi/wales/7066436.stm
I think its very important that people know that autistic children arent just 'naughty' ... It can be difficult, especially when family think you're allowing your children to run rampant, when that is clearly not the case.
And expecting everyone to act like Rainman just because they're autistic is wholly unfair.
zomg its official
We went for 15 minutes to see the prospective new school today.
We stayed for over 2 hours - pumpkin LOVED it, and though there will be an adjustment period, she just jumped right in.
She starts state nursery there monday. So much better than the private one she's in now!
We may or may not get a reception place there as we don't live in its catchment area, but just outside it, a 30 min walk on foot for me, more than that for pumpkin. Fingers crossed we do.
New school colours are sky blue and navy, not red and navy! We have an entire uniform to change out! ARGH.
We stayed for over 2 hours - pumpkin LOVED it, and though there will be an adjustment period, she just jumped right in.
She starts state nursery there monday. So much better than the private one she's in now!
We may or may not get a reception place there as we don't live in its catchment area, but just outside it, a 30 min walk on foot for me, more than that for pumpkin. Fingers crossed we do.
New school colours are sky blue and navy, not red and navy! We have an entire uniform to change out! ARGH.
High functioning autism
So. Its official. Its hfa and we've been right all along.
The relief is entirely palpable.
via TinyLJ@NokiaN95/12.0.013
The relief is entirely palpable.
via TinyLJ@NokiaN95/12.0.013
well blow me down...
Pumpkin has just finished with the child development clinic, day 2.
Pumpkin has semantic-pragmatic disorder, as defined by the speech-language pathologist today, who said she is definitely on the spectrum and was talking high functioning autism.
We'll have a big meeting on 18 Sept in the morning, with all the professionals she's just seen these last two mornings, and pool the information into one big report, which we can then take to schools and make sure that they can help her when she gets there.
She has problems understanding the nuances of what is said to her, she has social impairments (ie she cannot understand what kids are doing or why, or indeed relate to kids at all), and she has little/no imagination, cant imagine people or relate to them.
Every professional we've talked to AGREED with us today. We were gobsmacked, stunned really, at how receptive they were, instead of being fobbed off as we have been for so long by health visitors etc, told pumpkin was normal, etc. The CDC didnt think she was normal, oh no.
*aims this at the entire planet Earth*
I FUCKING TOLD YOU SO!
I've been saying it for 3+ years, the kid is autistic. I've known it from birth - she was never 'normal.' She's 'disabled.' She's 'special.' She's different.
My god, the relief and vindication are almost palpable.
Pumpkin has semantic-pragmatic disorder, as defined by the speech-language pathologist today, who said she is definitely on the spectrum and was talking high functioning autism.
We'll have a big meeting on 18 Sept in the morning, with all the professionals she's just seen these last two mornings, and pool the information into one big report, which we can then take to schools and make sure that they can help her when she gets there.
She has problems understanding the nuances of what is said to her, she has social impairments (ie she cannot understand what kids are doing or why, or indeed relate to kids at all), and she has little/no imagination, cant imagine people or relate to them.
Every professional we've talked to AGREED with us today. We were gobsmacked, stunned really, at how receptive they were, instead of being fobbed off as we have been for so long by health visitors etc, told pumpkin was normal, etc. The CDC didnt think she was normal, oh no.
*aims this at the entire planet Earth*
I FUCKING TOLD YOU SO!
I've been saying it for 3+ years, the kid is autistic. I've known it from birth - she was never 'normal.' She's 'disabled.' She's 'special.' She's different.
My god, the relief and vindication are almost palpable.
well well well
pumpkin had a child development consultation with a paediatrician this morning. Better half came with me.
pumpkin has problems that havent got a name yet, but warrant further investigation.
Paediatrician and registrar were very pointed in their questioning in relation to autism and Asperger's, and it seems pumpkin fits in with a lot of their criteria, in particular her ignoring of other children, her literal-ness, and her inability to understand certain concepts, like the passage of time, and to articulate some things, whilst her vocabulary is actually gigantic, her ability to express more complex ideas is limited. Also her jumping when she's excited (her version of hand flapping, i take it), and her fidgeting when she is thinking about something.
Paediatrician was very much reassuring that there is something wrong. There will be a further appointment in September where she is studied specifically over the course of a few mornings in a set situation with several professionals there, and then there will be a big meeting where we all sit down and discuss it afterwards.
Better half thinks this will lead to pumpkin being statemented for school at the very least, and possibly to a diagnosis. The paed said she may not be able to give it a specific name, but at least narrow it down to tendencies so that we can best help pumpkin and get pumpkin the best help we can in school and in education in general.
Halilujah for being taken seriously at LAST. Yes.
edited: and she's 3ft 3 (98.7cm), and 34 1/2 lbs (15.7kg). Bloody metric system.
pumpkin has problems that havent got a name yet, but warrant further investigation.
Paediatrician and registrar were very pointed in their questioning in relation to autism and Asperger's, and it seems pumpkin fits in with a lot of their criteria, in particular her ignoring of other children, her literal-ness, and her inability to understand certain concepts, like the passage of time, and to articulate some things, whilst her vocabulary is actually gigantic, her ability to express more complex ideas is limited. Also her jumping when she's excited (her version of hand flapping, i take it), and her fidgeting when she is thinking about something.
Paediatrician was very much reassuring that there is something wrong. There will be a further appointment in September where she is studied specifically over the course of a few mornings in a set situation with several professionals there, and then there will be a big meeting where we all sit down and discuss it afterwards.
Better half thinks this will lead to pumpkin being statemented for school at the very least, and possibly to a diagnosis. The paed said she may not be able to give it a specific name, but at least narrow it down to tendencies so that we can best help pumpkin and get pumpkin the best help we can in school and in education in general.
Halilujah for being taken seriously at LAST. Yes.
edited: and she's 3ft 3 (98.7cm), and 34 1/2 lbs (15.7kg). Bloody metric system.